FMR1 Gene Disorders Research Program

For Families

family walking together outdoors

FXTAS

Clinical resources are available in the greater Kansas City area. If you are an adult with FMR1 premutation, or suspect you may be a carrier, or have concerns related to FXTAS, you can seek clinical resources through the Landon Center on Aging and the Parkinson’s Disease and Movement Disorder Center, both at the KU Medical Center.

We also partner with other FAXTAS providers outside the Kansas City region, including:

Rush University Medical Center Parkinson’s Disease and Movement Disorders Program

UC Davis MIND Institute Fragile X Research and Treatment Center 

University of Michigan Ataxia Program 

 

Fragile X

In the Kansas City area, if have a child with Fragile X and are seeking assessment or intervention services, or if have concern that your child may have Fragile X Syndrome, you can find resources through the Center for Child Health and Development at the KU Medical Center, and through Children's Mercy in Kansas City, Misssouri.  

Other Fragile X providers outside the Kansas City region that are partners include:

Cincinnati Children’s Fragile X Research and Treatment Center

UC Davis MIND Institute Fragile X Research and Treatment Center

Rush University Children’s Hospital
 

 

Additional Resources

National Fragile X Foundation

FRAXA Research Foundation