Participate in Research

Brain Structure

FXTAS in aging FMR1 premutation carriers

We are interested in understanding behavioral and brain-based issues associated with disruptions of the Fragile X gene, FMR1. Our lab has conducted studies of brain behavior linkages in individuals with Fragile X syndrome and individuals with a premutation allele of the Fragile X gene.

Currently, the BRAIN Lab is seeking individuals aged 45-80 years for our studies of behavioral and brain changes during aging in healthy individuals and individuals with premutations of the Fragile X gene, FMR1. Both individuals with and without the premutation are eligible to participate.

  • Volunteers will complete a blood draw, Magnetic Resonance Imaging (MRI) test, and tests of motor skills and thinking abilities. Our MRI tests look at brain structure and brain function and are non-invasive and do not involve any radiation.
  • Testing will involve 2-3 visits to our labs at the KU Medical Center in Kansas City, Kansas, and at the University of Kansas in Lawrence. These visits will last 2-4 hours depending on availability.
  • Volunteers will be compensated for their time. Travel reimbursement may be available. 

If you are interested in participating, please fill out the FXTAS Screener Participant Form.

Contact information:

Phone: 785-864-4461

Email: BRAINlab@ku.edu